Every year Dr Perrin and his Manchester team host the Perrin Technique Conference where licensed Perrin Technique practitioners who were all personally trained by Dr Perrin gather to learn more about Dr Perrin’s work and discover new concepts and treatments that may help their CFS/ME and Fibromyalgia . This year’s conference took place in November at The Fairways Lodge & Leisure club in Prestwich , Manchester. UK
It was a very special conference as it celebrated 30 years since Ray Perrin successfully treated his first CFS/ME patient and began his long road of research and discovery.
We were privileged to welcome for our celebration conference Dr Perrin’s research colleague, research fellow Dr Lisa Riste from The University of Manchester and osteopath Tim Williams
Dr Lisa Riste talked about on the proposed NHS study into the treatment of CFS/ME with The Perrin Technique. Dr Riste will be the chief investigator of the project.
A Summary of the proposed NHS research project into the feasibility of incorporating The Perrin technique into The NHS is shown below. However, before we can start we need funding in the region of £300,000 . Our research group which includes doctors and staff from Salford Royal Foundation Trust headed by consultant Dr Adrian Heald who heads Salford Royal Hospital CFS clinic. Hopefully we will receive government funding but if not, as with all the research I have carried out up to now over the past 30 years, we may need to rely on the public funds.
In a study commissioned by The Optimum Health Clinic Foundation revealed that CFS/ME cost the NHS an estimated £550 Million and costs to society rose to at least £3.3 billion when inability to work, reliance on others for support and additional costs were included. (Source: Hunter RM, James M & Paxman J. Counting The Cost: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: 28th September 2017 Full Report 2020Health.org)
General Practitioners often refer patients to specialist services to confirm diagnosis and offer treatment. Treatments currently recommended include Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET), Activity Management and medication, although many patients seek other therapies privately.
A nationwide survey in 2010 by the ME association and The Fund for Osteopathic Research into ME (FORME) plus local groups in the North West all report patient support for The Perrin Technique, a manual technique to reduce neurotoxins from the central nervous system through lymphatic drainage. Over 50 UK practitioners offer this technique to self-funding patients. Unlike the recommended treatments which help patients cope with symptoms, this technique acts on what maintains it to improve health.
Aim: We wish to see whether patients attending an NHS CFS/ME service will participate in a trial offering this technique as an alternative to recommended treatments and see how they view this approach.
Methods: Up to 60 new patients attending a hospital based CFS/ME Service will be invited to participate in a trial. Eligible patients whose diagnosis is confirmed will be randomised to receive either ‘manual treatment’ or ‘treatment as usual’ (TAU), where as previously, the patient and clinician choose between CBT or Standard Activity Management.
Clinicians will record attendance at ‘manual treatment’ and ‘CBT/SAM’ sessions. Patient reported outcome measures will compare CFS/ME symptoms including fatigue, sleep, functioning, and quality of life at baseline (0m) and via post every 3 months until 12months between the two groups. Researchers will interview participants about the acceptability of receiving this new treatment and clinicians about delivering it in this setting.
In addition to a FORME co-applicant, we consulted CFS/ME Service patients with CBT and SAM experience and patients who had accessed the ‘manual treatment’ privately. Those consulted have agreed to act as our advisory group throughout the trial.
Dissemination: Results will be sent to participants, national and local CFS/ME charities, and via conference and journal publication. The results from this study will be used to develop a larger trial testing both the effectiveness and cost-effectiveness of delivering this treatment in the NHS to reduce inequalities to access.
The other guest lecturer Tim Williams has been a Perrin Technique Practitioner on the South Coast for many years. His talk with a practical demonstration aided by Perrin Technique practitioner Shirley Kay, from The Wirral, was on The Klinghardt approach to the diagnosis and management of Lyme disease and other co-infections in CFS/ME.
Tim is a fully trained Klighardt practitioner and spent much time with Dr Dietrich Klinghardt MD PhD who is internationally known for his successful treatment of chronic pain and illness, Dr. Klinghardt combines non-surgical orthopaedic medicine with immunology, endocrinology, toxicology, neural therapy, hypnotherapy and energy psychology.
We heard and saw an interesting display of the bio-energy component of Dr Klinghardt’s approach. Although a bit out of the box one needs to always keep an open mind about new approaches to treatment.
Thanks again to Tim for the presentation our honoured guest Gilian Crowther from The Academy of Nutritional Medicine and Annika Rutlin from The Klinghardt Education Team at The Klinghardt Institute.
For more information about the Dr Klighardt’s approach visit www.klinghardtinstitute.com
In the conference Dr Perrin also went through a few ways of dealing with the difficult cases and how to treat common comorbidities with a practical session.
We thank this year’s conference sponsors
The Klinghardt Institute
Igennus Healthcare Nutrition who produce some of the supplements that help support many patients with CFS/ME and Fibromyalgia FMS . For more information visit: www.igennus.com
Dennis Gore Pharmacy who have there world famous shop up the road from The Perrin Clinic in Prestwich, Manchester. For years they have been supplying many supplements and natural remedies that have helped many CFS/ME and fibromyalgia patients receiving The Perrin Technique www.dennisthechemist.com
and last but not least The Fund for Osteopathic Research into Myalgic Encephalomyelitis (F.O.R. M.E.) charitable trust who have supported Dr Perrin’s groundbreaking research work for most of the 30 years. For more details how to donate to this important charity visit www.forme-cfs.org.uk
One of the FORME trustees Nigel Brookwell who attended the conference will be carrying out a superhuman fund raising challenge next year to help raise as much as possible to support future Perrin Technique research at The Universioty of Manchester. He will be attempting to walk from Wigan in Lancashire to The University of Manchester This he will be doing in a full deep sea diving suit complete with lead boots and a metal helmet that is hard to carry more than a few meters never mind your wear on your head. Nigel’s own son has been hugely helped by Wigan Perrin Technique practitioner Sue Capstick and he has now dedicated his time and effort to raise awareness and necessary funds to enable to help research into The Perrin Technique.
To make a donation for Nigel’s amazing and slightly bonkers challenge visit www.forme-cfs.org.uk